Thursday, July 21, 2011

How are you feeling?


This is the question that I receive most often. I know that people are just concerned about me and wish they could help, but it is the question I dread the most. Mostly because I almost never know how to answer. I usually just answer the generic 'good', in the same way anyone would answer the question "how's it going?" when the question is really just a greeting and not requiring your recent medical history as an answer. So If you are one of those people I have dismissed in this manner, I apologize.

I don't know how to answer this question because 1) I don't like to complain. I never have. I don't like to air my personal struggles with others, it's just who I am, so please don't take it personally. and 2) I honestly don't really know how I'm feeling.

I believe that everyone who has late stage Lyme deals with their own unique disease and it is difficult to describe exactly what I am feeling. At times all I could describe how I was feeling 'icky' or 'awful'. I know these are not very descriptive terms the best way I could describe it was that I felt I needed to throw up at a cellular level. The intensity of this was the worst before treatment started, fortunately this feeling has been one of the areas of the greatest improvement. Also, how I am feeling changes day to day. If I am asked "How are you feeling?" do you want to know this instant? might be fairly good (or bad), but I know that will change. So my response is often 'some days are better than others' For me it can sometimes be some hours are better than others.

..but I am writing this post to answer the question despite my personal issues and the difficulty of answering it. Overall at this point (after nearly two months of antibiotic treatment) and despite ups and downs my answer is: 'Slightly improved'

I'll take improvement by degrees. I knew this would be a long (and expensive) process. I hope for continued improvement as the days,weeks and months go by. I also pray for my son who will soon be on treatment as well.

thank you to everyone who has asked me how I was feeling and please keep Zachary and myself in your prayers - it is helping.

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